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BORN Ontario

The Better Outcomes Registry & Network (BORN Ontario) is a Canadian research network based in Ottawa, Ontario. Its purpose is to collect and organize data on perinatal, newborn and child wellbeing in the Province of Ontario.

History

In 2010, members from the Council of Medical Officers of Health (COMOH) and the Association of Public Health Epidemiologists in Ontario (APHEO) submitted a discussion paper to BORN Ontario to advocate for public health unit access to the BORN Ontario registry data for population health assessment and surveillance of reproductive health in Ontario. As a direct result, APHEO representatives engaged with BORN Ontario to identify the mechanism for access to BORN Ontario data for PHUs and relevant data elements for public health.1)

COVID-19

In response to the COVID-19 pandemic, BORN was asked to sit on the Provincial Council for Maternal and Child Health (PCMCH) Maternal-Neonatal COVID-19 Task Force responsible for developing provincial recommendations to guide care.2) BORN is also represented within the CAN-COVID network.

Organization

BORN is administered through the Children's Hospital of Eastern Ontario (CHEO) and “is active in every region of the province.”3) It is housed in the Centre for Practice-Changing Research, a research facility jointly run by the Ottawa Hospital Research Institute and CHEO Research Institute.4)

Team

Executive Team5)
Name Position Affiliation(s)
Alexander Barron Pediatric Medical Advisor American Academy of Pediatrics, American Board of Pediatrics, Bermuda Hospitals Board, Bloom Care Solutions, Canadian Armed Forces Health Services Group, Canadian International Development Agency (now Global Affairs Canada), Canadian Medical Protective Association (CMPA), Canadian Society of Physician Leaders, Centre for Quality Improvement & Patient Safety (CQuIPS), Churchill Society for the Advancement of Parliamentary Democracy, College of Physicians and Surgeons of Ontario (CPSO), East Coast Sociable Committee, Grand River Hospital, Harvard Alumni Association, International Security Assistance Force (ISAF), Medical Council of Canada, North York General Hospital, Ontario Health, Ontario Medical Association, Royal College of Physicians and Surgeons of Canada, Saegis Safety Institute, SickKids, SickKids Centre for Global Child Health, St. Joseph's Health Centre6) 7) 8)
Eyal Cohen Pediatric Medical Advisor Canadian Foundation for Healthcare Improvement (CFHI), Canadian Institutes of Health Research (CIHR), CanChild Centre for Childhood Disability Research, Center for Policy, Outcomes and Prevention (CPOP), Children's Hospital at Westmead, Commonwealth Fund, Edwin S.H. Leong Centre for Health Children, Institute for Clinical Evaluative Sciences, Lucile Packard Foundation for Children's Health, Ontario COVID-19 Science Advisory Table (OST), Ontario Public Drug Program, Provincial Council of Maternal and Child Health, PSI Foundation, Queen's University, SickKids, SickKids Research Institute, University of Toronto, University of Toronto Data Sciences Institute (DSI)9) 10)
Dan Collins Program Manager Canadian Forces Station Alert (CFS Alert), Children's Hospital of Eastern Ontario (CHEO), Department of National Defence, HCA Healthcare, Healthtech Consultants, IBM Consulting, Management and Strategy Institute, NCR, PM Experience, Project Management Institute, Synproma11) 12)
Shelley Dougan Executive Director Public Health Agency of Canada (PHAC), Vaccine Surveillance Reference Group, COVID-19 Immunity Task Force13)
Merryn Douglas Manager of Health Networks Arnprior Regional Health, Children's Hospital of Eastern Ontario (CHEO), Habitat for Humanity Greater Ottawa14) 15)
Ian Joiner Manager of Health Outcomes Canadian Institute for Health Information (CIHI), College of Physiotherapists of Ontario, Heart and Stroke Foundation of Canada, International Association of Privacy Professionals, Ottawa Hospital16)
Heather Keegan Manager of Prenatal Screening Canadian International Development Agency (now Global Affairs Canada), Oxfam Canada, World Vision Canada17)
Monique Lugli Vice President of Child Development and Community Services Children's Hospital of Eastern Ontario (CHEO), Governor General's Canadian Leadership Conference, Health Canada, Kids Come First Health Team, Liberal Party of Canada, North Bay Parry Sound District Health Unit, Patty Hadju, Santis Health18)
Mark Walker Scientific Director Canadian Institutes of Health Research (CIHR), Canadian Perinatal Surveillance System, OMNI Research Group, Ottawa Hospital, Ottawa Hospital Research Institute, Provincial Council for Maternal Newborn Health, Society of Investigators in Obstetrics and Gynecology, University of Ottawa19) 20) 21)
Coordinator Team22)
Mélanie Daboud Regional Coordinator23) -
Kaamel Hafizi Regional Coordinator24) -
Moya Johnson Fertility Coordinator25) -
Rebecca Johnston Regional Coordinator26) -
Catherine Lombardo Regional Coordinator27) -
Maxine Vigneault Prenatal Screening Ontario Coordinator28) -
Jennifer Mercer Regional Coordinator29) -
Allison Wood Regional Coordinator30) -
Researchers31)
Aislinn Conway Investigator The Center for Implementation (TCI), Clinical Evidence Based Information System, Cochrane, Dublin Dental University Hospital, Health Information and Quality Authority (HIQA), Health Research Board Trials Methodology Research Network (HRB-TMRN), Health Service Executive, Institute of Health Services and Policy Research, Integrated Knowledge Translation Research Network, Jeremy Grimshaw and Mark Walker (supervisors), Society for Implementation Research Collaboration (SIRC), University of Limerick32)
Daniel Corsi Scientist Canadian Institutes of Health Research (CIHR), OMNI Research Group, Ottawa Hospital Research Institute, University of Ottawa33)
Dina El Demellawy Investigator -
Deshayne Fell Scientist Bill & Melinda Gates Foundation (research funding), Canadian Association for Immunization Research, Evaluation and Education (CAIRE), Institute of Clinical Evaluative Sciences (ICES), National Advisory Committee on Immunization (NACI), Society for Epidemic Research, University of Ottawa, World Health Organization
Nathalie Lepage Investigator -
Grace Maio Investigator -

Funding

Partnerships

OMama

2)
Bisnaire, L. (2020). BORN 2018-2020 Biennial Report. BORN Ontario. https://www.bornontario.ca/en/publications/resources/Documents/annual-report-j_47511589-6.pdf
4)
Paterson, J., & Vienneau, A. (2011, December 14). Ottawa Hospital Research Institute and CHEO Research Institute open new research centre dedicated to improving health and patient care. Ottawa Hospital Research Institute. https://web.archive.org/web/20221018173321/https://www.ohri.ca/newsroom/story/view/226?l=en#:~:text=Called%20the%20Centre%20for%20Practice,of%20Eastern%20Ontario%20(CHEO).
6)
Alexander Barron. Canadian Medical Protective Association. Retrieved October 18, 2022, from https://archive.ph/cxmOn
7)
About 1. Dr. Alex Barron for CMPA Council. Retrieved October 18, 2022, from https://archive.ph/WS557
8)
Alex Barron MD, MBA, MSc, FRCPC, FAAP. LinkedIn. Retrieved October 18, 2022, from https://ca.linkedin.com/in/alex-barron-md-mba-msc-frcpc-faap-0a3037191
9)
Eyal Cohen | SickKids Directory. SickKids. Retrieved October 18, 2022, from https://archive.ph/xlMVA
10)
Ng, V., Science, M., Feld, J., Shah, H., Bitnun, A., Bourns, L., Campigotto, A., Cohen, E., Gubbay, J., Jimenez-Rivera, C., Orkin, J., Razak, F., Saunders, A., Sayed, B., Salvadori, M., Yaffe, B., Zygmunt, A., & Allen, U. (2022). Severe Acute Hepatitis in Children of Unknown Etiology. Science Briefs of the Ontario COVID-19 Science Advisory Table. https://doi.org/10.47326/ocsat.2022.03.63.1.0
11)
Dan Collins. LinkedIn. Retrieved October 18, 2022, from https://ca.linkedin.com/in/danwcollins
12)
About Dan. (2015). PM Experience, Inc. https://archive.ph/3WUku
13)
Fell, D. B., Dhinsa, T., Alton, G. D., Török, E., Dimanlig-Cruz, S., Regan, A. K., Sprague, A. E., Buchan, S. A., Kwong, J. C., Wilson, S. E., Håberg, S. E., Gravel, C. A., Wilson, K., El-Chaâr, D., Walker, M. C., Barrett, J., MacDonald, S. E., Okun, N., Shah, P. S., & Dougan, S. D. (2022). Association of COVID-19 Vaccination in Pregnancy With Adverse Peripartum Outcomes. JAMA. https://doi.org/10.1001/jama.2022.4255
14)
Our Team. Habitat for Humanity Greater Ottawa. Retrieved October 18, 2022, from https://archive.ph/03LSI
15)
Arnprior Regional Health Uses Accreditation Canada’s Program to Enable Community Collaboration and Improve Patient Care. (2017, November 3). Accreditation Canada. https://archive.ph/HwagN
16)
Ian C Joiner. LinkedIn. Retrieved October 18, 2022, from https://ca.linkedin.com/in/iancjoiner
17)
Heather Keegan. LinkedIn. Retrieved October 18, 2022, from https://www.linkedin.com/in/heather-keegan-39453b3/
18)
Monique Lugli. LinkedIn. Retrieved October 18, 2022, from www.linkedin.com/in/monique-lugli-819b011/
19)
Mark Walker. LinkedIn. Retrieved October 18, 2022, from www.linkedin.com/in/mark-walker-1281103a/
20)
Mark Walker. Ottawa Hospital Research Institute. Retrieved October 19, 2022, from https://web.archive.org/web/20221019020244/https://www.ohri.ca/profile/MWalker
21)
Walker, M. C., Willner, I., Miguel, O. X., Murphy, M. S. Q., El-Chaâr, D., Moretti, F., Dingwall Harvey, A. L. J., Rennicks White, R., Muldoon, K. A., Carrington, A. M., Hawken, S., & Aviv, R. I. (2022). Using deep-learning in fetal ultrasound analysis for diagnosis of cystic hygroma in the first trimester. PLOS ONE, 17(6), e0269323. https://doi.org/10.1371/journal.pone.0269323
31)
BORN Ontario. CHEO Research Institute. Retrieved October 19, 2022, from https://web.archive.org/web/20221019022045/https://www.cheoresearch.ca/research/areas/born-ontario/
33)
Corsi, Daniel. Department of Epidemiology. Retrieved October 19, 2022, from https://archive.ph/8pZnp
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