====== Institute for Gene Therapies ======

{{ ::institute_for_gene_therapies_logo_.png?200|}}

The **Institute for Gene Therapies (IGT)** is an American biotechnology lobbying organization based in [[united_states:Washington, D.C.]]

===== Organization =====

==== Personnel ====

^  Institute for Gene Therapies - Team((//IGT Leadership.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194617/https://www.gene-therapies.org/igt-leadership))  ^^^
^ Name  ^ Position  ^ Notes  ^
| [[Erik Paulsen]]  | Chairman  | [[United States House of Representatives]], [[Minnesota Legislature]], [[Target]]  |
| [[Michael Capaldi]]  | Executive Director  | [[pharmaceutical_companies:Sanofi]], [[Life Sciences Trainers & Educators Network]] (L-TEN)  |
| [[Donna Christian-Christensen]]  | Chair of the Scientific, Academic and Medical Council  | [[United States House of Representatives]], [[Congressional Black Caucus Health Braintrust]], [[Christensen Institute for Community Health and Empowerment]], [[United States Virgin Islands Department of Health]]  |
| [[John Feore]]  | Director of Health Policy & Advocacy  | [[Avalere]], [[Dentons]]  |
| [[Kenny Hodge]]  | Director of Federal Affairs  | [[American-European Congress of Opthalmic Surgeons]], [[We Work For Health]], [[Columbia University Mailman School of Public Health]]  |

==== Corporate Advisory Council ====

IGT's corporate advisory council consists of:((//Corporate Advisory Council.// Institute for Gene Therapies. Retrieved March 21, 2023, from https://web.archive.org/web/20230321172055/https://www.gene-therapies.org/corporate-advisory-council))

  * [[pharmaceutical_companies:Astellas]]
  * [[pharmaceutical_companies:Bluebird Bio]]
  * [[pharmaceutical_companies:Johnson & Johnson]]
  * [[pharmaceutical_companies:Orchard Therapeutics]]
  * [[pharmaceutical_companies:Pfizer]]
  * [[pharmaceutical_companies:PTC Therapeutics]]
  * [[pharmaceutical_companies:Sarepta Therapeutics]]
  * [[pharmaceutical_companies:Spark Therapeutics]]
  * [[pharmaceutical_companies:Taysha Gene Therapies]]
  * [[pharmaceutical_companies:UltraGenyx Pharmaceuticals]]
  * [[pharmaceutical_companies:Vertex Pharmaceuticals]]

==== Patient Advocacy Advisory Council ====

ITG's Patient Advocacy Advisory Council consists of:((//Patient Advisory Council.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194627/https://www.gene-therapies.org/patient-advisory-council))

  * [[AADC Family Network]]
  * [[Autoimmune Association]]
  * [[Barth Syndrome Foundation]]
  * [[Bladder Cancer Advocacy Network]] (BCAN)
  * [[CMT Research Foundation]]
  * [[Cure Duchenne]]
  * [[Cure Rare Disease]]
  * [[Cure SMA]]
  * [[EveryLife Foundation for Rare Diseases]]
  * [[Friedreich's Ataxia Research Alliance]] (FARA)
  * [[Gaucher Community Alliance]] (GCA)
  * [[Global Genes]]
  * [[Jenn McNary]] ([[One Rare]])
  * [[Khrystal Davis]] ([[Texas Rare Alliance]])
  * [[Lauren Holder]] ([[Help 4 HD]])
  * [[National Patient Advocate Foundation]] (NPAF)
  * [[Rolf Benirschke]]
  * [[Soft Bones]]

==== Scientific, Academic & Medical Council ====

ITG' Scientific, Academic & Medical Council consists of:((//Scientific, Academic & Medical Council.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194636/https://www.gene-therapies.org/scientific-academic-medical-council))

  * [[Foundation Fighting Blindness]]
  * [[Gene Therapy Program]] (GTP)
  * [[National Human Genome Center]] (NHGC)
  * [[Rett Syndrome Research Trust]]
  * [[UNC Gene Therapy Center]]
  * [[University of Iowa Center for Gene Therapy]]
===== External links =====

  * [[https://www.linkedin.com/company/institute-for-gene-therapies/|LinkedIn]]
  * [[https://www.gene-therapies.org/|Website]]