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institute_for_gene_therapies [2023/05/23 21:40]
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institute_for_gene_therapies [2023/05/23 22:19] (current)
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 The **Institute for Gene Therapies (IGT)** is an American biotechnology lobbying organization based in [[united_states:Washington, D.C.]] The **Institute for Gene Therapies (IGT)** is an American biotechnology lobbying organization based in [[united_states:Washington, D.C.]]
  
 +===== Organization =====
 +
 +==== Personnel ====
 +
 +^  Institute for Gene Therapies - Team((//IGT Leadership.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194617/https://www.gene-therapies.org/igt-leadership))  ^^^
 +^ Name  ^ Position  ^ Notes  ^
 +| [[Erik Paulsen]]  | Chairman  | [[United States House of Representatives]], [[Minnesota Legislature]], [[Target]]  |
 +| [[Michael Capaldi]]  | Executive Director  | [[pharmaceutical_companies:Sanofi]], [[Life Sciences Trainers & Educators Network]] (L-TEN)  |
 +| [[Donna Christian-Christensen]]  | Chair of the Scientific, Academic and Medical Council  | [[United States House of Representatives]], [[Congressional Black Caucus Health Braintrust]], [[Christensen Institute for Community Health and Empowerment]], [[United States Virgin Islands Department of Health]]  |
 +| [[John Feore]]  | Director of Health Policy & Advocacy  | [[Avalere]], [[Dentons]]  |
 +| [[Kenny Hodge]]  | Director of Federal Affairs  | [[American-European Congress of Opthalmic Surgeons]], [[We Work For Health]], [[Columbia University Mailman School of Public Health]]  |
 +
 +==== Corporate Advisory Council ====
 +
 +IGT's corporate advisory council consists of:((//Corporate Advisory Council.// Institute for Gene Therapies. Retrieved March 21, 2023, from https://web.archive.org/web/20230321172055/https://www.gene-therapies.org/corporate-advisory-council))
 +
 +  * [[pharmaceutical_companies:Astellas]]
 +  * [[pharmaceutical_companies:Bluebird Bio]]
 +  * [[pharmaceutical_companies:Johnson & Johnson]]
 +  * [[pharmaceutical_companies:Orchard Therapeutics]]
 +  * [[pharmaceutical_companies:Pfizer]]
 +  * [[pharmaceutical_companies:PTC Therapeutics]]
 +  * [[pharmaceutical_companies:Sarepta Therapeutics]]
 +  * [[pharmaceutical_companies:Spark Therapeutics]]
 +  * [[pharmaceutical_companies:Taysha Gene Therapies]]
 +  * [[pharmaceutical_companies:UltraGenyx Pharmaceuticals]]
 +  * [[pharmaceutical_companies:Vertex Pharmaceuticals]]
 +
 +==== Patient Advocacy Advisory Council ====
 +
 +ITG's Patient Advocacy Advisory Council consists of:((//Patient Advisory Council.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194627/https://www.gene-therapies.org/patient-advisory-council))
 +
 +  * [[AADC Family Network]]
 +  * [[Autoimmune Association]]
 +  * [[Barth Syndrome Foundation]]
 +  * [[Bladder Cancer Advocacy Network]] (BCAN)
 +  * [[CMT Research Foundation]]
 +  * [[Cure Duchenne]]
 +  * [[Cure Rare Disease]]
 +  * [[Cure SMA]]
 +  * [[EveryLife Foundation for Rare Diseases]]
 +  * [[Friedreich's Ataxia Research Alliance]] (FARA)
 +  * [[Gaucher Community Alliance]] (GCA)
 +  * [[Global Genes]]
 +  * [[Jenn McNary]] ([[One Rare]])
 +  * [[Khrystal Davis]] ([[Texas Rare Alliance]])
 +  * [[Lauren Holder]] ([[Help 4 HD]])
 +  * [[National Patient Advocate Foundation]] (NPAF)
 +  * [[Rolf Benirschke]]
 +  * [[Soft Bones]]
 +
 +==== Scientific, Academic & Medical Council ====
 +
 +ITG' Scientific, Academic & Medical Council consists of:((//Scientific, Academic & Medical Council.// Institute for Gene Therapies. Retrieved May 23, 2023, from https://web.archive.org/web/20230523194636/https://www.gene-therapies.org/scientific-academic-medical-council))
 +
 +  * [[Foundation Fighting Blindness]]
 +  * [[Gene Therapy Program]] (GTP)
 +  * [[National Human Genome Center]] (NHGC)
 +  * [[Rett Syndrome Research Trust]]
 +  * [[UNC Gene Therapy Center]]
 +  * [[University of Iowa Center for Gene Therapy]]
 ===== External links ===== ===== External links =====
  
   * [[https://www.linkedin.com/company/institute-for-gene-therapies/|LinkedIn]]   * [[https://www.linkedin.com/company/institute-for-gene-therapies/|LinkedIn]]
   * [[https://www.gene-therapies.org/|Website]]   * [[https://www.gene-therapies.org/|Website]]
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